Thread: restless leg syndrome RLS

Originally Posted by Lunica

ooo thanks :]

I can't take ibprouven before bed.. it relaxes me too much and I stop breathing :/

it sucks

I need to relax to meditate and dream.. but at the same time it brings on apnea

The shaking feeling isn't very nice.. It just doesnt stop for ages

Can I make it stop?
Thank you :]

oh i'm sorry! really the only thing i can think of is to meditate and a hot bath sorry i can't help more

Has anyone tried my Soap idea that I posted earlier in this thread? My mom swears it works for her, but I'm curious if anyone else has had success with it.

Originally Posted by Lunica

ooo thanks :]

I can't take ibprouven before bed.. it relaxes me too much and I stop breathing :/

it sucks

I need to relax to meditate and dream.. but at the same time it brings on apnea

The shaking feeling isn't very nice.. It just doesnt stop for ages

Can I make it stop?
Thank you :]

Umm..

Ibuprophen does not effect the CNS in anyway, therefore does not relax you, nor stop your breathing..

Originally Posted by moe007

Umm..

Ibuprophen does not effect the CNS in anyway, therefore does not relax you, nor stop your breathing..

I have apnea and like when I have alchol or take paracetamol it does seem to make it worst.

is Ibuprophen different to paracetamol ?

I dunno

The shaking is really weird.. Its like a constant earthquake round my bottom half. :/

its strange.

I doubt I will ever know

Could be lack of nutrition. I have the same "problem", and I either dreamt, or read it somewere, that it was a common syndrom to having the lack of something..

Funny I should read this post. Now I got to find out where it was..

hmmm

thats interesting.

I'm vegetarian so maybe I am missing someting.

thanks :]

Originally Posted by Lunica

The shaking is really weird.. Its like a constant earthquake round my bottom half. :/

I experience something similar once in a while. This type of shaking, which is not the same type of shaking I've felt with the onset of SP, happens when I'm getting close to falling asleep at night. It seems to feel like it's coming from under me. It never really bothered me though, I actually think it feels pretty cool. It almost feels like as if I was shivering, but without actually feeling cold...

Maybe it is an onset to sleep paralysis, but every time I've had it I would just move slightly and it would go away.

I'm more inclined to think it is stress related though... I've never experienced it until recently and over the past year or two my stress levels have gone up an entire step.

[QUOTE=Dewitback;683721]a lot of time at night I feel the symptoms of RLS. Where my legs are uncomfortable and I have to move them to flex them or get up and walk to get rid of the feeling, but its only temporary until the RLS comes back.
But does anyone know any non-medical remedies?

Originally Posted by little nemo

I've recently experienced faint twinges of RLS but only after I've had alcohol.

Originally Posted by Dewitback

Actually, I find myself getting RLS more often when I work on my legs all day!! i have jobs where I don't sit down all day, and I still get RLS! so obnoxious!!!

Originally Posted by DuB

I've had quite frequent problems with this ever since middle school when I had a handful of epileptic seizures.
I haven't tried any of the prescription medications or herbal remedies so I can't comment on those - I usually just wait it out and it eventually goes away (which can take a few hours). I have noticed that, at least for me, alcohol tends to help. But I wouldn't recommend that as a healthy way to cope.

Originally Posted by skysaw

I was diagnosed with RLS several years ago, and know quite a bit about it.
I have been taking a medication called Requip, which completely helps the RLS symptoms, but has side-effects I do not like: it makes me feel a little nausiated, and it knocks me out cold for about an hour.
I just saw a new doctor, and am trying a new promising drug. I don't remember the brand name, but the generic is Gabapentin. Requip does not have a generic. So far it is helping, but I'm still adjusting dosing.
Now as to all the other cures, here is what I have gathered from both experience and extensive reading:
Exercise and stretching can help somewhat, but not in the evening or near the time you lie down for rest, when it can make it worse. Walking can make the symptoms go away, but only while you're actually doing the walking. As soon as you stop, the symptoms return.
In general, meditation and relaxation do nothing. In some cases, it has actually been reported to worsen! Not that there aren't real benefits from meditation, but if you're feeling the RLS, it's not going to stop it.
RLS is a very serious problem. Even if you are asleep and not aware of the kicking you're doing at night, you will wake up more tired because you are not as deeply asleep as you should be. A very slight silver lining is that at the right level of kicking, it can actually aid in lucid dreaming! But it's not worth it... RLS flat-out sucks. I've had it for many, many years, but only in the last three or four has it gotten absolutely unbearable. Medication is the only reasonable solution for me.

Originally Posted by Lunica

I have been experiencing like my whole body shaking when falling to sleep.. Its like theres an earthquake but it stops when I move around abit. It seems to be coming from my legs and goes all over my body.. but Im not physically moving.. it feels like something to do with my balance. like when you get drunk and things spin.. like that but shaking.(

Originally Posted by reesespieces

i would take a hot bath! i have the same thing that you do or take an ibprouven that always helps me if you have any more questions just ask!

I am sorry I discovered this thread so late while I could have helped ages ago!
Firstly, RLS is caused by structures seated deep inside the brain itself. If you are tired because of exercise or because of exams, it will worsen the symptoms.
Most medication that work on the central nervous system eventually aggravates it. Alcohol works initially because it can cause you to sleep deeply, but when your blood sugar drops and you are sleeping lighter in the morning, you may wake up in a worse condition.
You do NOT have RLS WHILE asleep. It only keeps you from sleeping. But a large proportion of persons suffering from severe RLS also have a condition known as Periodic Leg Movements, and even other movement disturbances during sleep, which commonly do result (unknowing to him or her) in sleep deprivation.
The dopaminergic system is responsible for this dysfunction. Treatment for Parkinson's may help, but has side-effects. Since the sensory part of the "reflex" is partially dependent upon the condition of the muscle and nerves in the legs, anti-inflammatories or anti-epileptics (acting as nervous membrane stabilizers) may also assist some individuals, but this is highly variable.
First line of advice is to get your iron levels checked out and perhaps take regular iron supplements. This is often a problem, or it help even if it seems medically normal in the blood tests. Be careful with B-vitamins, they tend to aggravate it, often dramatically. But sometimes it can be low sugar or electrolyte imbalances that plays a role in triggering the attack.
Lastly, Lunica's experience is known as hypnagogic myoclonus and is medically considered completely innocent. It is part of a brain that struggles a bit to switch off its motor system as it starts to play around with impulses we do not even remember what they are about. Sometimes we dream we step over something, and trip. It is EXTREMELY common. Mostly people just do not wake up because of it.
One day when I am big I would like to start a big forum where these things can be available for everybody. They are just so much, I cannot do it alone and I know the facts are thinly spread even inside medical literature.

Thanks for all that info

I looked hypnagogic myoclonus up on google. Is that when the person physically moves? Because I don't actually move. More feels like my room and bed is shaking.. and making me shake. But I tested last night and I'm not moving at all

I think I will get a blood test. Because I don't think I get much iron. Maybe thats it?

Thank you :]

Gah...

Magnesium! Do you got enough of that?

Lunica: Are you AWAKE when it happens?? During drowsiness / early sleep you will not be able to check yourself, you dream (or hallucinate, whatever way you look at it). You will need to ask someone to check for you. Sleep paralysis is when you believe you are awake, try to move but cannot (are paralyzed), and sometimes you may feel you cannot breathe either, because your chest is too heavy. Hypnagogic hallucinations are more often something you hear or see, but I am not certain that it cannot be movement like yours also.
Paracetamol should not make you more sleepy, neither should ibuprofen, unless you are taking alcohol or something to make you sleep. They may both make you more drunk because they interfere with the liver's ability to clear the alcohol from your blood. Some medicines may also work like that, so check with your doctor.
You mention you have apnea: is it under control? It may cause selective REM-sleep deprivation and secondarily REM-sleep onset. This may be a reason for hypnagogic hallucinations that is very important not to ignore!

Originally Posted by G0MPgomp

Gah...

Magnesium! Do you got enough of that?

I am not sure. I eat bananas now and then. :/ the only other things I have high in manesium is Soya milk/Spinach but even then its not much at all.

tbh I think it has something to do with my diet. I just eat noodles everyday and a couple times a week something like veg burger or soya meat. which is really bad when I think about it lol

It has only been happening over the past couple of months.

an2net
~ yeah I'm definitely awake, it happens as soon as I'm horizontal and sleepy.
Like blade5x said it stops when I move.

The reason why it is horrible is because I get paranoid a ghost is shaking the bed which I know is funny.

I'm goin to book blood tests today.
My diet was much more varied a couple of months ago. Thinking about it.. it seems to have changed when my diet became poor.

I know I'm not tripping out when it happens. I don't think my apnea is that bad. It comes and goes in stages. Sometimes I get it a lot and sometimes not at all. Its only when falling to sleep. Sometimes I wake up with really bad headaches that last for about 20minutes. But I don't think thats it. Because I'm much awake when it happens. Its like as soon as I get into bed and lie flat for 30seconds.

It doesn't seem harmful. Im going to see what the blood tests say.

Thanks for all the help people
Can being deficient of nutrients cause this?

Though its a bit late sorry for hijackin this thread

Originally Posted by Lunica

Though its a bit late sorry for hijackin this thread

Dearest Lunica!

I've not been around the site for some time. My computer gave trouble and I was very ill for several months now. Did you hijack the site??

I've read through your posts again. I am NOT a doctor and NOT allowed to play doctor over the Net. I feel responsible to help because the info is sometimes scarce and difficult to access. Therefore, always take the advice as from a friend, and if it is worrying somehow, make a printout and take with you to a doctor.

That being said, there IS something else that is worrying me more as we go further and further. It is NOT a sleep disorder.

Why are you not eating? I hope you are hungry!! There is one medical thing that can give you such troubling illusions WHILE YOU ARE AWAKE and WAITING TO DOZE OFF. What you need to tell any doctor: whether it is episodic (not all day and starts quickly), are repeated in a very similar fashion however frequently, probably last less than 2 minutes, are scary, and will be aggravated by hunger and perhaps even some medicine, if you are being treated. The diagnosis sounds much worse than it should, and it is mostly treatable. Please take these threats and yourself to a doctor or even neurologist / psychiatrist because I cannot take you any further. Even if it is just to settle your mind. I believe you, and I think it is a real MEDICAL problem, not dreaming, and perhaps not even purely psychological.

As soon as you get this message, please let me know how you are! Testimony may be allowable for discussion if you are willing afterwards!

I hope I don't seem freaked out, I am not. I will be grateful if I am still helping you. I am sorry I was not faster answering back.

Wow... this is an old thread.

I had a sleep study done a while back and discovered I have mild sleep apnea and mild RLS.
I had guessed at the RLS to some point. What helped me before the study is placing a ton of laundry at the end of the couch I sleep on. I can push against them and the snug feeling usually eases my leg discomfort. After the sleep study, the doctor recommended I try vitamin E. I don't recall the exact dose, I'll look it up and see if I can find more details. He said it works for some people but not for everyone. He also said to try it for a month and if it feels like it's helping, to keep taking it. If not, then simply stop. I've not tried it yet, but I probably will soon.

I hope everyone is well.

So, this happens to me during the day, to the point that it interferes with my schoolwork. Does anyone know of an, if not cure, then assist that works during the day, aside from the homemade tea mix above?

Originally Posted by JET73L

So, this happens to me during the day, to the point that it interferes with my schoolwork. Does anyone know of an, if not cure, then assist that works during the day, aside from the homemade tea mix above?

Dear JET73L!

If this happens to you WHILE AWAKE rather than light SLEEP, chances are that it is a MEDICAL problem rather than a day-to-day problem. You really need to get the attention of a medical doctor. If you are scared, do not hesitate to take a printout of this threat along. Show it to your parents. It may be important. Tell a teacher you can trust. Interference with school work is NOT ignorable, and I cannot give you any other advice than this. We need you people to come and tell us what was found once it goes better with medical treatment, if only to tell people that it CAN be ok! I am glad we are not alone, by the way! I just cannot interfere with your medical treatment!!

My best wishes accompany you and Lunica!

Originally Posted by Zhaylin

Wow... this is an old thread.

I had a sleep study done a while back and discovered I have mild sleep apnea and mild RLS.
I had guessed at the RLS to some point. What helped me before the study is placing a ton of laundry at the end of the couch I sleep on. I can push against them and the snug feeling usually eases my leg discomfort.

It is an old RLS threat! Only we got confused with another medical problem, too. That is what got my attention when I got back after so many months' silence.

These medical and almost-medical things seem currently very confusing for lay-people on the Net. I have asked a colleague today if we cannot make a large project to sort the important stuff from a scientific viewpoint so that ordinary people can find their way easier and be more knowledgeable about diagnoses.

RLS is usually diagnosed in my country on the basis of symptoms alone. A warm bath can also help. Enquire at your doctor about a drug called Requip. It does wonders!!

There are three different types of sleep apnoea: obstructive, central and mixed. The subclassification into mild, moderate and severe is often besides the point! I believe you may have Periodic Limb Movements (the leg movements associated with RLS) DURING sleep. This is frequently associated with a milder form of central or obstructive sleep apnoea. I believe this combination has to do with the way our brains get older an looses some dopamine that parts still need (even when we are sometimes still very young). The medicine often works for both.

Sometimes we get RLS as a, probable secondary, symptom in moderate to severe obstructive or mixed types of sleep apnoea. A dental plate to draw your lower jaw slightly forward may make you more comfortable, and can be used in conjunction with the popularly advised CPAP machines. Keeping your nose free from inflammation and too much secretion can also help.

Let us know what work for you.

I don't know how RLS is related to sleep apnea, but RLS it's self if caused by poor osmotic pressure in your body. Which basically means you're out of shape. Either a lack of vitamins and minerals, and/or general poor physical health. Do some exercise, expecially cardio excercises.

Jet, you may be low in potassium. Eat more bananas and see if that helps. I learned about it when I was pregnant and my legs started aching. My oldest son has problems with severe charlie horses in his legs when he's sleeping. Every time I make him eat more bananas, the episodes subside.

Thanks An2net for the info. My mom needs a breathing machine for her apnea but she has it quite severely as well as RSL and PLM. When she used to snore it was like a train lol. The machine and some meds has done wonders for her.

I don't snore unless I have a cold and my problems aren't infering with my life to any great extent, so my doctor didn't recommend adding more meds to the meds I already take. And my apnea isn't severe enough to warrant a machine. He said if my symptoms worsen to return.
I went in for the test because I suspected I might have narcolepsy because I have anxiety-induced cataplexia. They didn't find any evidence of narcolepsy.

Thanks Cusp for the information. But my episodes get worse when I've been highly active that day. Because of my horrible diet though, I may be lacking in vitamins and minerals so I should start taking a multi-vitamin.

Originally Posted by Zhaylin

I may be lacking in vitamins and minerals so I should start taking a multi-vitamin.

And try some chamomile tea instead of ordinary tea later in the day and evening! Meds and vits can aggravate it, so can genes.

@An2net: Yeah, it only happens when I'm still awake, and it does happen any time I'm still for very long (a few seconds to a few minutes), every day. I've asked about it, but they just said it was because I was hyperactive (Not medically hyperactive, just hyperactive like any kid would have been)

@ Zhaylin: Yeah, I had to take potassium for a while, my dad has to take it all the time, but I don't recallif it helped at all with this. I'll go back on it see if that helps. Thanks!

Originally Posted by JET73L

Yeah, it only happens when I'm still awake, and it does happen any time I'm still for very long (a few seconds to a few minutes), every day. I've asked about it, but they just said it was because I was hyperactive (Not medically hyperactive, just hyperactive like any kid would have been)

This is what I feared had happened. Mine was ignored for more than 30 years and I am bearing the consequences now. Ask for a referral to a neurologist or somebody who knows about epilepsy. Don't think I am silly. It is absolutely wonderful to "wake up" and be able to concentrate for a change! These are not the big convulsions the words make you think of, but it sounds exactly like complex focal seizures! They do not make us stupid, which fools ordinary doctors. I work with EEGs on such patients every day and I do not think a printout from this threat may harm a medical consultation as much as to be written off as some kind of hyperactivity with no medical name. Plz go again! The only really helpful tricks I can tell you may be more harmful to you than these episodes currently feel. I will look around for a website to check for yourself, too. And I don't want to pretend I can make the diagnosis myself. I am just too used to the same needs and treatment to ignore this.

What do your parents think of this? And your teachers?

Originally Posted by JET73L

@An2net: Yeah, it only happens when I'm still awake, and it does happen any time I'm still for very long (a few seconds to a few minutes), every day. I've asked about it, but they just said it was because I was hyperactive (Not medically hyperactive, just hyperactive like any kid would have been)

Some promised websites:
http://www.epilepsyfoundation.org/ab...es/complex.cfm
http://www.epilepsy.org.uk/info/complex.html
and a nice question table on:
http://www.epilepsy.com/epilepsy/seizure_complexpartial

What the usual flaw is that the people ask you to go to a doctor when you think you may have epilepsy and then describe a very limited number of kinds of these seizures! There are really numerous different kinds, and when they turn complex they still differ between many patients. The top one was the nicest in this regard.

Good luck!